Czas na zmianę podejścia do jąkania
Monika Pakura
Uniwersytet Śląski w Katowicachhttps://orcid.org/0000-0002-8016-8158
Joanna Szymczakowska
Uniwersytet Śląski w Katowicachhttps://orcid.org/0009-0007-9293-321X
Katarzyna Węsierska
Uniwersytet Śląski w Katowicachhttps://orcid.org/0000-0001-6378-9350
Abstract
Artykuł opisuje fenomen jąkania i związane z nim zagadnienia. Autorki pokazują, jak wyniki badań naukowych wpłynęły na zmianę podejścia do jąkania w światowej i polskiej logopedii. Akcentują znaczenie aktualizacji wiedzy terapeutów oraz jej upowszechnianie wśród społeczeństwa. Omawiają wybrane mity związane z postrzeganiem jąkania, interpretując je w kontekście dowodów naukowych. Wskazują na zasadność postrzegania jąkania jako werbalnej różnorodności. W tekście szczegółowo odnoszą się do proponowanych działań praktycznych, które mogą mieć wpływ na wsparcie udzielane osobom z jąkaniem oraz poprawę jakości ich życia. Prezentują także nowe spojrzenie na rolę logopedy w interwencji logopedycznej w jąkaniu.
Schlagworte:
jąkanie, komunikacja, płynność, postawy, werbalna różnorodność, zmianaLiteraturhinweise
Bailey K., Harris S.J., Simpson S. (2015): Stammering and the social model of disability:
Crossref
Google Scholar
Challenge and opportunity. „Procedia-Social and Behavioral Sciences” 193, s. 13–24. Google Scholar
Beilby J.M., Byrnes M.L., Meagher E.L., Yaruss, J.S. (2013): The impact of stuttering on adults who stutter and their partners. „Journal of Fluency Disorders” 38(1), s. 14–29.
Crossref
Google Scholar
Bernstein Ratner N. (2005): Evidence-based practice in stuttering: Some questions to consider. „Journal of Fluency Disorders” 30(3), s. 163–188.
Crossref
Google Scholar
Bloodstein O., Bernstein Ratner N., Brundage S.B. (2021): The Handbook on Stuttering (7 ed.). San Diego. Google Scholar
Boyle M.P. (2013): Psychological characteristics and perceptions of stuttering of adults who stutter with and without support group experience. „Journal of Fluency Disorders” 38(4), s. 368–381.
Crossref
Google Scholar
Boyle M.P. (2014): Relationships between psychosocial factors and quality of life for adults who stutter. „American Journal of Speech-Language Pathology” 24(1), s. 1–12.
Crossref
Google Scholar
Boyle M.P. (2018): Enacted stigma and felt stigma experienced by adults who stutter. „Journal of Communication Disorders” 73, s 50–61.
Crossref
Google Scholar
Boyle M.P., Beita-Ell C., Milewski K.M., Fearon A.N. (2018): Self-esteem, self-efficacy, and social support as predictors of communicative participation in adults who stutter. „Journal of Speech, Language, and Hearing Research” 61(8), s. 1893–1906.
Crossref
Google Scholar
Byrd C.T. (2023): Blank Center CARE Model™. Application for School-Age Children Who Stutter. Dream. Speak. Live. Publications. Austin. Google Scholar
Byrd C.T., Coalson G.A., Young M.M. (2022): Targeting communication effectiveness in adults who stutter: A preliminary study. „Topics in Language Disorders” 42(1), s. 76–93.
Crossref
Google Scholar
Byrd C.T., Gkalitsiou Z., Werle D., Coalson G.A. (2018): Exploring the Effectiveness of an Intensive Treatment Program for School-Age Children Who Stutter, Camp Dream. Speak. Live.: A Follow-up Study. „Seminars in Speech and Language” 39(05), s. 458–468.
Crossref
Google Scholar
Ceglarski A., Michta I., Wyrwas K. (2021): Pozainstytucjonalne wsparcie dla osób jąkających się – ruch samopomocy i autoterapia. [W:] Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu. Red. K. Węsierska, H. Sønsterud. Chorzów, s. 625–650. Google Scholar
Chang S.E., Garnett E.O., Etchell A., Chow H.M. (2019): Functional and neuroanatomical bases of developmental stuttering: Current insights. „The Neuroscientist” 25(6), s. 566–582.
Crossref
Google Scholar
Chęciek M. (2007): Jąkanie. Diagnoza – Terapia – Program. Kraków. Google Scholar
Chun R.Y.S., Mendes C.D., Yaruss J.S., Quesal R.W. (2010): The impact of stuttering on quality of life of children and adolescents. „Pró-Fono Revista de Atualização Científica” 22, s. 567–570.
Crossref
Google Scholar
Constantino C.D. (2016): Stuttering gain. International Stuttering Association, International Stuttering Awareness Day Online Conference 2016. „International Stuttering Awareness Day”, , dostęp: 26.01.2024. Google Scholar
Constantino C.D (2018): What Can Stutterers Learn from the Neurodiversity Movement? „Seminars in Speech and Language” 39(04), s. 382–396.
Crossref
Google Scholar
Constantino C.D., Campbell P., Simpson S. (2022): Stuttering and the social model. „Journal of Communication Disorders” 96, s. 1–11.
Crossref
Google Scholar
Constantino C.D., Manning W.H., Nordstrom S.N. (2017): Rethinking covert stuttering. „Journal of Fluency Disorders” 53, s. 26–40.
Crossref
Google Scholar
Corcoran J.A., Stewart M. (1998): Stories of stuttering: A qualitative analysis of interview narratives. „Journal of Fluency Disorders” 23, s. 247–264.
Crossref
Google Scholar
Crichton-Smith I. (2002): Communicating in the real world: Accounts from people who stammer. „Journal of Fluency Disorders” 27, s. 333–352.
Crossref
Google Scholar
Daniels D.E., Hagstrom F., Gabel R.M. (2006): A qualitative study of how African American men who stutter attribute meaning to identity and life choices. „Journal of Fluency Disorders” 31, s. 200–215.
Crossref
Google Scholar
De Nardo T., Gabel R.M., Tetnowski J.A., Swartz E.R. (2016): Self-acceptance of stuttering: A preliminary study. „Journal of Communication Disorders” 60, s. 27–38
Crossref
Google Scholar
DeThorne L., Gerlach-Houck H. (2023): Resisting Ableism in School-Based Speech-Language Therapy: An Invitation to Change. „Language, Speech, and Hearing Services in Schools” 54(1), s. 1–7.
Crossref
Google Scholar
Dignazio L.E., Kenny M.M., Raj E.X., Pelkey K.D. (2020): Stuttering-related podcasts: Audio-based self-help for people who stutter. „Perspectives of the ASHA Special Interest Groups” 5(5), s. 1131–1138.
Crossref
Google Scholar
Eggers K. (2021): Stawanie się efektywnym logopedą specjalizującym się w zaburzeniach płynności mowy. [W:] Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu. Red. K. Węsierska, H. Sønsterud. Chorzów, s. 65–83. Google Scholar
Erickson S., Block S. (2013): The social and communication impact of stuttering on adolescents and their families. „Journal of Fluency Disorders” 38(4), s. 311–324.
Crossref
Google Scholar
Etchell A.C., Civier O., Ballard K.J., Sowman P.F. (2018): A systematic literature review of neuroimaging research on developmental stuttering between 1995 and 2016. „Journal of Fluency Disorders” 55, s. 6–45.
Crossref
Google Scholar
Evans J., Williams R. (2015): Stuttering in film media-investigation of a stereotype. „Procedia-Social and Behavioral Sciences” 193, s. 337.
Crossref
Google Scholar
Gerlach-Houck H., Constantino C.D. (2022): Interrupting ableism in stuttering therapy and research: Practical suggestions. „Perspectives of the ASHA Special Interest Groups” 7(2), s. 357–374.
Crossref
Google Scholar
Johnson J.K. (2008): The visualization of the twisted tongue: Portrayals of stuttering in film, television, and comic books. „Journal of Popular Culture” 41(2), s. 245−261.
Crossref
Google Scholar
Kraft S.J., Yairi E. (2012): Genetic bases of stuttering: The state of the art, 2011. „Folia Phoniatrica et Logopaedica” 64(1), s. 34–47.
Crossref
Google Scholar
Logan K.J., Yaruss J.S. (1999): Helping parents address attitudinal and emotional factors with young children who stutter. „Contemporary Issues in Communication Science and Disorders” 26, s. 69–81.
Crossref
Google Scholar
Oliver M. (1981): A new model of the social work role in relation to disability. [W:] The handicapped person: A new perspective for social workers. Red. J. Campling. London, s. 19–32. Google Scholar
Oliver M. (2013): The social model of disability: Thirty years on. „Disability & Society” 28(7), s. 1024–1026.
Crossref
Google Scholar
Płusajska-Otto A., Myszka A., (2022): Rola filmów w kształtowaniu właściwych postaw wobec jąkania się. Refleksje z polskich projekcji filmu When I stutter. „Forum Lingwistyczne” 10, s. 1–28.
Crossref
Google Scholar
Perkins W.H. (1990): What is stuttering? [Review]. „Journal of Speech Hearing Disorder” 55(3), s. 370–382.
Crossref
Google Scholar
Plexico L.W., Erath S., Shores H., Burrus E. (2019): Self-acceptance, resilience, coping and satisfaction of life in people who stutter. „Journal of Fluency Disorders” 59, s. 52–63.
Crossref
Google Scholar
Plexico L.W., Manning W.H., DiLollo A. (2010): Client perceptions of effective and ineffective therapeutic alliances during treatment for stuttering. „Journal of Fluency Disorders” 35(4), s. 333–354.
Crossref
Google Scholar
Reeves N.A., Flynn T.W., Schuff R.Z. (2023): Ableism to empowerment: Navigating school structures when working with students who stutter. „Language, Speech, and Hearing Services in Schools” 54(1), s. 8–26.
Crossref
Google Scholar
Reeves N., Yaruss J.S. (2024): Go-To-Guide: Getting Started with School-Age Stuttering Therapy. McKinney. Google Scholar
Rodgers N.H., Gerlach-Houck H. (2022): “Knowledge without action means nothing”: Stakeholder insights on the behaviors that constitute positive change for adults who stutter. „American Journal of Speech-Language Pathology” 31(4), s. 1637–1652.
Crossref
Google Scholar
Shapiro D.A. (2011): Stuttering Intervention: a collaborative journey to fluency freedom. Austin. Google Scholar
Sheehan V.M., Sisskin V. (2001): The creative process in avoidance reduction therapy for stuttering. „Perspectives on Fluency and Fluency Disorders” 11(1), s. 7–11.
Crossref
Google Scholar
Sisskin V. (2018): Avoidance reduction therapy for stuttering (ARTs). [W:] More than fluency: The social, emotional, and cognitive dimensions of stuttering. Red. B.J. Amster, E.R. Klein. San Diego, s. 157–186. Google Scholar
Sisskin V. (2022): Disfluency-affirming therapy for young people who stutter: Unpacking ableism in the therapy room. „Language, Speech, and Hearing Services in Schools” 54(1), s. 114–119.
Crossref
Google Scholar
Sisskin V., Goldstein B. (2022): Avoidance reduction therapy for school-age children who stutter. „Seminars in Speech and Language” 43(02), s. 147–160.
Crossref
Google Scholar
Smart J.F. (2009): The power of models of disability. „Journal of Rehabilitation” 75(2), s. 3–11. Google Scholar
Smith A., Kelly E. (1997): Stuttering: a dynamic, multifactorial model. [W:] Nature and Treatment of Stuttering: New Directions. 2nd ed. Red. R. Curlee, G. Siegel. Needham Hills, s. 204–217. Google Scholar
Smith A., Weber C. (2017): How stuttering develops: the multifactorial dynamic pathways theory. „Journal of Speech, Language and Hearing Research” 60(9), s. 2483–2505.
Crossref
Google Scholar
St. Louis K.O. (2011): The Public Opinion Survey of Human Attributes-Stuttering (POSHA–S): Summary framework and empirical comparisons. „Journal of Fluency Disorders” 36, s. 256–261.
Crossref
Google Scholar
St. Louis K.O. (2015a): Epidemiology of public attitudes toward stuttering. [W:] Stuttering meets stereotype, stigma, and discrimination: an overview of attitude research. Red. K.O. St. Louis. Morgantown, s. 7–42. Google Scholar
St. Louis K.O. (2015b): Personal Appraisal of Support for Stuttering-Adult (PASS-Ad). Morgantown. Google Scholar
St. Louis K.O., Irani F., Gabel R.M., Hughes S., Langevin M., Rodriguez M., Scott K.S., Weidner M.E. (2017): Evidence-based guidelines for being supportive of people who stutter in North America. „Journal of Fluency Disorders” 53, s. 1–13.
Crossref
Google Scholar
St. Louis K.O., Weidner M.E. (2015): Personal Appraisal on Stuttering Support-Child (PASS-Ch). Morgantown. Google Scholar
St. Louis K.O., Węsierska K., Polewczyk I. (2018): Improving Polish Stuttering Attitudes: An Experimental Study of Teachers and University Students. „American Journal of Speech-Language Pathology” 27, s. 1195–1210.
Crossref
Google Scholar
St. Louis K.O., Węsierska K., Przepiórka A., Błachnio A., Beucher C., Abdalla F., Flynn T., Reichel I., Beste-Guldborg A., Junuzović-Žunić L., Gottwald S., Hartley J., Eisert S., Johnson K.N., Bolton B., Sangani M.T., Rezai H., Abdi S., Pushpavathi M., Aliveto E. Google Scholar
(2020): Success in changing stuttering attitudes: A retrospective analysis of 29 intervention studies. „Journal of Communication Disorders” 84, s. 118. Google Scholar
Tarkowski Z. (2003): Jąkanie. Giełkot. [W:] Logopedia. Pytania i odpowiedzi. T. 2. Red. T. Gałkowski, G. Jastrzębowska. Opole, s. 176–191. Google Scholar
Twardowski A. (2018): Społeczny model niepełnosprawności analiza krytyczna. „Studia Edukacyjne” 48, s. 97–114.
Crossref
Google Scholar
Tichenor S.E., Constantino C., Yaruss J.S. (2022): A point of view about fluency. „Journal of Speech, Language, and Hearing Research” 65(2), s. 645–652.
Crossref
Google Scholar
Tichenor S.E., Herring C., Yaruss J.S. (2022): Understanding the speaker’s experience of stuttering can improve stuttering therapy. „Topics in Language Disorders” 42(1), s. 57−75.
Crossref
Google Scholar
Tichenor S., Yaruss J.S. (2018): A phenomenological analysis of the experience of stuttering. „American Journal of Speech-Language-Pathology” 27, s. 1180–1194.
Crossref
Google Scholar
Tichenor S.E., Yaruss J.S. (2019): Stuttering as defined by adults who stutter. „Journal of Speech, Language, and Hearing Research” 62(12), s. 4356–4369.
Crossref
Google Scholar
Tumanova V., Choi D. Conture E.G., Walden T.A. (2018): Expressed parental concern regarding childhood stuttering and the Test of Childhood Stuttering. „Journal of Communication Disorders” 72, s. 86–96.
Crossref
Google Scholar
Union of the Physically Impaired against Segregation (1976): Fundamental principles of disability, „University of Leeds”, , dostęp: 30.06.2024. Google Scholar
Weidner M., St. Louis K.O. (2022): Zmiana społecznych postaw wobec jąkania. [W:] Dialog bez barier – kompleksowa interwencja logopedyczna w jąkaniu. Red. K. Węsierska, H. Sønsterud. Chorzów, s. 117–157. Google Scholar
Węsierska K. (2023): Czego nas uczą historie ludzi z jąkaniem i giełkotem? – wstępne doniesienia z badań. Seminarium z okazji Międzynarodowego Dnia Świadomości Jąkania, Uniwersytet Śląski w Katowicach, 21.10.24. Google Scholar
Węsierska K., Weidner M., Sønsterud H. (2021): Let’s empower children who stutter and their parents so they can speak the changes they wish to see, „International Stuttering Awareness Day”, , dostęp: 24.01.2023. Google Scholar
World Health Organization (2001): The International Classification of Functioning, Disability and Health. World Health Organization. Geneva. Google Scholar
Vanryckeghem M., Brutten G.J. (2007a): Behavior Assessment Battery (BAB) for Children Who Stutter. San Diego. Google Scholar
Vanryckeghem M., Brutten G.J. (2007b): Behavior Assessment Battery (BAB) for Adults Who Stutter. San Diego. Google Scholar
Vanryckeghem M., Brutten G.J. (2007c): KiddyCAT Communication Attitude Test for Preschool and Kindergarten Children Who Stutter. San Diego. Google Scholar
Yairi E., Ambrose N. (2013): Epidemiology of stuttering: 21st century advances. „Journal of Fluency Disorders” 38(2), s. 66–87.
Crossref
Google Scholar
Yaruss J.S. (2003): One size does not fit all: special topics in stuttering therapy. „Seminars in Speech and Language” 24, s. 3–6.
Crossref
Google Scholar
Yaruss J.S. (2010): Assessing quality of life in stuttering treatment outcomes research. „Journal of Fluency Disorders” 35(3), s. 190–202.
Crossref
Google Scholar
Yaruss J.S., Quesal R.W. (2004): Stuttering and the International Classification of Functioning, Disability, and Health (ICF): An update. „Journal of Communication Disorders” 37, s. 35–52.
Crossref
Google Scholar
Yaruss J.S., Quesal R.W. (2006): Overall Assessment of the Speaker’s Experience of Stuttering (OASES): Documenting multiple outcomes in stuttering treatment. „Journal of Fluency Disorders” 31, s. 90–115.
Crossref
Google Scholar
Yaruss J.S., Quesal R.W. (2010): Overall Assessment of the Speaker’s Experience of Stuttering (OASES). McKinney. Google Scholar
Yaruss J.S., Quesal R.W. (2016): Overall Assessment of the Speaker’s Experience of Stuttering (OASES). McKinney. Google Scholar